Huntington's Disease Association

The Huntington's Disease Association is committed to supporting people affected directly or indirectly by Huntington's disease.  There is a Specialist Huntington's Disease Adviser working to support families in the North East affected by Huntington's disease, offering advice, information and a listening ear.  The Specialist Huntington's Disease Adviser also offers advice and training to professionals working with people with Huntington's Disease.  

If you would like to speak to the Specialist Huntington's Disease Adviser please contact Ivy Broadhead on 0191 4064974  or email ivy.broadhead@hda.org.uk. 

The Northumberland Tyne and Wear Support group for people living in families where there is Huntington's disease meets in person every 2 months, as does  the Durham Support Group. There is also have a North East online Support Group that meets virtually every 2 months.To check meeting dates and times please contact Ivy Broadhead on 0191 4064974 or email ivy.broadhead@hda.org.uk 

The aim of the meetings is to offer mutual support in a friendly atmosphere.  The meetings are open to anyone who is in a family where there is Huntington's, whether you carry the gene yourself, are at risk, or are a partner or other family member.

The Huntington's Disease Association runs a regular programme of free Webinars and other events of interest to people living in families where there is Huntington's Disease Association.  These are listed on the Events page of our website.